EuRRECa (European Registries for Rare Endocrine Conditions) which is funded by the European Union’s Health Programme is aimed at maximising the opportunity for all patients, health care professionals and researchers to participate and use high-quality, patient-centred registries for rare endocrine conditions covered within the European Reference Network on Rare Endocrine Conditions (Endo-ERN)…Continue reading
EMA: Public consultation on key principles for the use of patient registries for regulatory purposes Stakeholders and members of the public are invited to submit comments on these key principles via an online form until 30th June 2019.
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