EuRRECa (European Registries for Rare Endocrine Conditions) which is funded by the European Union’s Health Programme is aimed at maximising the opportunity for patients, health care professionals and researchers to participate and use high-quality registries. The project, launched in 2018, includes an e-reporting programme (e-REC), a core registry that collects a common dataset and clinician and patient reported outcomes. The project will also develop a list of affiliate detailed disease registries that are approved for data sharing. EuRRECa works closely with Endo-ERN, ESPE and ESE and the platforms it has developed have also been adopted by ERN-BOND and its related registry, EuRR-Bone.
From April 2020, the e-REC platform will also be used to capture the occurrence of a new COVID19 infection in a patient with an existing endocrine or bone condition. The platform remains open for any centre that would like to participate.