EuRRECa (European Registries for Rare Endocrine Conditions) which is funded by the European Union’s Health Programme is aimed at maximising the opportunity for all patients, health care professionals and researchers to participate and use high-quality, patient-centred registries for rare endocrine conditions covered within the European Reference Network on Rare Endocrine Conditions (Endo-ERN)
Please provide feedback before 4th September 2019.
EMA: Public consultation on key principles for the use of patient registries for regulatory purposes Stakeholders and members of the public are invited to submit comments on these key principles via an online form until 30th June 2019.
This website is part of the project ‘777215 / EuRRECa’ which has received funding from the European Union’s Health Programme (2014-2020). The content of this website represents the views of the author only and is his/her sole responsibility; it can not be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.