3rd EuRRECa Annual Project Group Meeting 2021
Register Here
Monday 12th April 2021, 10:45-13:15 CET (Zoom link)
Full Programme
10:45 EuRRECa Project Group Meeting
10:50 – 11:00 Introduction & summary of activities over last year – Faisal Ahmed
11:00 – 11:10 The EuRR-Bone project – Natasha Appelman-Dijkstra
11:10 – 11:20 e-Reporting of Rare Conditions (WP06) –Salma Ali [e-REC Report]
11:20 – 11:30 Core Registry (WP06) – Ana Luisa Priego [Core Registry Activity Report]
11:30 – 11:40 Developing a list of affiliate registries (WP03) – Salma Ali
11:40 – 11:50 Developing core & generic outcomes (WP04, WP05, EuRR-Bone) – Ana Luisa Priego
11:50 – 12:00 Discussions and coffee
12:00 – 13:10 Projects
- Calcium & Phosphate – Agnes Linglart
- Hypothalamic & Pituitary – Mehul Dattani
- Thyroid – Edward Visser
- Adrenal – Nicole Reisch
- Sex Development & Maturation – Anna Nordenstrom
- Glucose & Insulin – Zdenek Sumnik
- COVID19 Project With ESE – Jillian Bryce
13:10-13:15 Discussion
13:15 Project Group Meeting Ends
