EuRRECa 3rd Annual Project Group Meeting, 12th April 2021 (Virtual Meeting)

3^rd EuRRECa Annual Project Group Meeting 2021

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Monday 12th April 2021, 10:45-13:15 CET (Zoom link)

Full Programme

10:45                       EuRRECa Project Group Meeting

10:50 – 11:00        Introduction & summary of activities over last year – Faisal Ahmed

11:00 – 11:10        The EuRR-Bone project – Natasha Appelman-Dijkstra

11:10 – 11:20        e-Reporting of Rare Conditions (WP06) –Salma Ali [e-REC Report]

11:20 – 11:30        Core Registry (WP06) – Ana Luisa Priego [Core Registry Activity Report]

11:30 – 11:40        Developing a list of affiliate registries (WP03) – Salma Ali

11:40 – 11:50        Developing core & generic outcomes (WP04, WP05, EuRR-Bone) – Ana Luisa Priego

11:50 – 12:00        Discussions and coffee

12:00 – 13:10        Projects

• Calcium & Phosphate – Agnes Linglart
• Hypothalamic & Pituitary – Mehul Dattani
• Thyroid – Edward Visser
• Adrenal – Nicole Reisch
• Sex Development & Maturation – Anna Nordenstrom
• Glucose & Insulin – Zdenek Sumnik
• COVID19 Project With ESE – Jillian Bryce

13:10-13:15           Discussion

13:15                       Project Group Meeting Ends