2nd EuRRECa Project Group Meeting

This is a Project Group Meeting for all members of the EuRRECa Workpackage and Expert Working Groups, Independent Advisory Board and representatives of ESE, ESPE, Endo-ERN, DGSANTE and JRC who should register here  before 1/2/20

Monday 9th March, 11:00-17:00 CET

Istituto Auxologico Italiano, Villa Caramora on Lago Maggiore (Verbania), Italy.

Full Programme

09:00               Business Meetings

09:00 – 10:00   Project Governing Board Business Meeting 

09:00 – 10:00   Independent Advisory Board Meeting  

10:30 – 11:00   Coffee & Registration For Project Group Meeting  

 11:00               Start Of EuRRECa Project Group Meeting  

11:00 – 11:15   Introduction to EuRRECa and its coordination (WP01) – FA

11:20 – 11:30   Dissemination & Access (WP02) – OH

11:30 – 11:40   Quality Assurance & Evaluation (WP03) – LP/YK

11:40 – 11:50   Core Outcomes (WP04) – OD

11:50 – 12:00   Patients, Parents & Ethics (WP05) – MC

12:00 – 12:30   Discussion

12:30 – 13:30   Lunch 

13:30 – 13:50  e-Reporting of Rare Endocrine Conditions (WP06) – FA, JB, SA

13:50 – 14:15   Discussion

14:15 – 14:30  Core Endocrine Registry (WP06) – FA

14:30 – 14:45   Discussion

14:45 – 15:30  Expert Working Group Updates – ALL EWG leads (or deputies)

15:30 – 16:30  Coffee and small group interaction 

16:30 – 17:00   Summing up – FA

17:00               Close of EuRRECa Project Group Meeting

17:00 – 17:30   Independent Advisory Board Meeting

Meeting Hotel Website

Hotel and Venue for annual meeting, Lake Maggiore (Verbania – north of Milan)