This is a Project Group Meeting for all members of the EuRRECa Workpackage and Expert Working Groups, Independent Advisory Board and representatives of ESE, ESPE, Endo-ERN, DGSANTE and JRC who should register here before 1/2/20
Monday 9th March, 11:00-17:00 CET
Istituto Auxologico Italiano, Villa Caramora on Lago Maggiore (Verbania), Italy.
Full Programme
09:00 Business Meetings
09:00 – 10:00 Project Governing Board Business Meeting
09:00 – 10:00 Independent Advisory Board Meeting
10:30 – 11:00 Coffee & Registration For Project Group Meeting
11:00 Start Of EuRRECa Project Group Meeting
11:00 – 11:15 Introduction to EuRRECa and its coordination (WP01) – FA
11:20 – 11:30 Dissemination & Access (WP02) – OH
11:30 – 11:40 Quality Assurance & Evaluation (WP03) – LP/YK
11:40 – 11:50 Core Outcomes (WP04) – OD
11:50 – 12:00 Patients, Parents & Ethics (WP05) – MC
12:00 – 12:30 Discussion
12:30 – 13:30 Lunch
13:30 – 13:50 e-Reporting of Rare Endocrine Conditions (WP06) – FA, JB, SA
13:50 – 14:15 Discussion
14:15 – 14:30 Core Endocrine Registry (WP06) – FA
14:30 – 14:45 Discussion
14:45 – 15:30 Expert Working Group Updates – ALL EWG leads (or deputies)
15:30 – 16:30 Coffee and small group interaction
16:30 – 17:00 Summing up – FA
17:00 Close of EuRRECa Project Group Meeting
17:00 – 17:30 Independent Advisory Board Meeting
Meeting Hotel Website
