e-REC (e-Reporting Of Rare Conditions) is an electronic reporting system to capture activity as well as to understand the occurrence of these rare conditions. An electronic reporting system that is performed regularly allows doctors to gather more information about these rare conditions and the care received by the people with these conditions. Participation in this project is open to all clinical centres, including those who are not members of Endo-ERN or ERN-BOND.
To see the range of conditions that doctors can report view the eREC Conditions Dictionary
To find out if your centre is participating in e-REC see the list of Centres Participating in e-REC
More details of the e-REC platform can be found in the Public Information Sheets
The e-REC platform has been approved by an Ethics Committee in the UK Data Governance & Ethics Information