Affilated Registries draft

Signposting health care providers and patients to high quality detailed disease registries is one of the central aims of the EuRRECa project. EuRRECa will achieve this aim by developing a list of affiliate registries.

The benefits of affiliate status include:-

  • Affiliate status will allow the EuRRECa information sheets to be used for the affiliate registry
  • Data entered in the the EuRRECa Core Registry can be shared with the affiliate
  • Greater visibility of the affiliate registry through EuRRECa’s channels of dissemination
  • Greater likelihood of sustaining high quality detailed disease registries

The process for obtaining affiliate status is currently under review and prospective registries are requested to contact