Signposting health care providers and patients to high quality detailed disease registries is one of the central aims of the EuRRECa project. EuRRECa will achieve this aim by developing a list of affiliate registries.
The benefits of affiliate status include:-
- The EuRRECa information sheets and consent forms can be used for the affiliate registry as well as the EuRRECa Core Registry
- Data entered in the EuRRECa Core Registry can be shared with the affiliate registry
- Greater visibility of the affiliate registry through EuRRECa’s channels of dissemination
- Greater likelihood of sustaining high quality detailed disease registries
Registries seeking affiliate status are requested to contact firstname.lastname@example.org