Information Sheets

Core Registry

To add patients to the Core Registry, informed consent is required. The table below contains information sheets and consent forms in use in the centres listed. These information sheets and consent forms have been created on the template from the paperwork in English created in the UK where the original ethics and data governance approvals were obtained in 2019.

LanguageCountryCityCentreDate of last revisionPIS AdultPIS ChildIC form
CzechCzech RepublicPragueCharles University09.08.2020Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
DutchBelgiumGhentGhent University Hospital15.04.2020Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
DutchNetherlandsLeidenLeiden University Medical Centre24.11.2022Document, download, file, files, pdf iconDocument, download, file, files, pdf icon
EnglishUKGlasgowRoyal Hospital for Children06.01.2020Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
FrenchFranceParisHôpital Bicêtre20.08.2020Document, download, file, files, pdf iconDocument, download, file, files, pdf iconopt-out system
GermanUKGlasgowRoyal Hospital for Children07.08.2020Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
GermanGermanyBochumRuhr-Universität Bochum13.08.2020Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
GermanAustriaLinzKepler Universitäts Klinikum18.08.2020Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
ItalianItalyFlorenceUniversity Hospital Florence, Careggi24.06.2020Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
If adding patients to the Core Registry, please send the information sheets and consent form used by your centre to info@eurreca.net

If you have any queries about the information sheets then please contact: eurreca@lumc.nl

If you require information sheets from the following centres then please use the contact details provided to find out more information:

CountryCityCentre Contact
AustriaViennaVienna Bone & Growth Centrevbgc@meduniwien.ac.at

Old Information Sheets

ERN Consent Forms