Core Registry

The EuRRECa Core Registry has been operational since June 2019 and collects information for a wide range of rare conditions including those that are covered within Endo‐ERN and ERN-BOND.  The data collected in the Registry will be used to improve clinical care as well as research and oversight to data access is provided by the Data Access Committee.   Click the link below to request access to the registry.

Further information about current activity on the Core Registry is available through its regular activity reports.

Request Access to the Core Registry