The EuRRECa Core Endocrine Registry will collect a very small amount of core information in a registry for rare endocrine conditions that are covered within Endo‐ERN – the European Reference Network (ERN) on Rare Endocrine Conditions. The data collected in the Registry might be used to perform research, develop new research studies and, in general, lead to improved clinical care. The results of the studies will be published in medical journals. The registry will also advise participants on other suitable studies and registries. It is anticipated that the Core Endocrine Registry will become operational around July 2019. For further details please refer to the following paperwork. For further queries or to make any suggestions for improvement please contact email@example.com.
Core Endocrine Registry Information Sheets