The e-reporting tool (e-REC) that has been developed as part of the European Registries for Rare Endocrine Conditions (EuRRECa) project, funded by EU CHAFEA and supported by ENDO-ERN, ESE and ESPE is open to all centres across the world. It has been fully operational since July 2018 within a robust governance and ethical framework that does not require individual patient consent. Since April 2020, close collaboration with the ESE Rare Disease Committee, has also led to the extension of the platform for reporting COVID-19 infection in a patient with an existing endocrine or bone condition.
You can find out more about the functionality of e-REC in this recent report. If you need any assistance, please email the EuRRECa team at eurreca@lumc.nl
For more information from ESE on their activities, resources and information on COVID-19, visit their dedicated webpage and the RD COVID-19 Task Force.
Secondary Surveys
The e-REC platform also supports the development of secondary surveys for selected conditions including COVID-19 cases. A list of open surveys is available on the secondary surveys webpage. All COVID-19 surveys were closed on 31/3/22.
EuRRECa 