The e-reporting tool (e-REC) that has been developed as part of the European Registries for Rare Endocrine Conditions (EuRRECa) project, funded by EU CHAFEA and supported by ENDO-ERN, ESE and ESPE is open to all centres across the world. It has been fully operational since July 2018 within a robust governance and ethical framework that does not require individual patient consent. Since April 2020, close collaboration with the ESE Rare Disease Committee, has also led to the extension of the platform for reporting COVID-19 infection in a patient with an existing endocrine or bone condition.
If you would like to use the e-REC platform to report a new COVID-19 infection in a patient with an existing condition, please visit the e-REC platform and create an account.
If you are already an active user of e-REC, then, after login, you will need to revise your ‘reporting set up’.
Instructions for reporting a new COVID-19 case in a patient with an existing endocrine or bone condition
The e-REC platform has been extended to capture new COVID-19 cases in all of the condition groups supported by EuRRECa.
COVID-19 cases can be reported as suspected or confirmed. If a case is suspected, it is recommended that the return is saved as ‘In Progress’ (not submitted) and once confirmed, the return can be revised.
To add COVID-19 in your Reporting set-up, ensure there are no In Progress returns upon log-in and open ‘reporting set-up’. Click on all the condition groups in adults or in children that you want to report on.
COVID-19 cases should be reported in the month the infection arose.
The e-REC platform also supports the development of secondary surveys for selected conditions including COVID-19 cases. A list of open surveys is available on the secondary surveys webpage and more are in development.