The e-reporting tool (e-REC) that has been developed as part of the European Registries for Rare Endocrine Conditions (EuRRECa) project, funded by EU CHAFEA and supported by ENDO-ERN, ESE and ESPE is open to all centres across the world. It has been fully operational since July 2018 within a robust governance and ethical framework that does not require individual patient consent. Since April 2020, close collaboration with the ESE Rare Disease Committee, has also led to the extension of the platform for reporting COVID-19 infection in a patient with an existing endocrine or bone condition.
The e-REC platform also supports the development of secondary surveys for selected conditions including COVID-19 cases. A list of open surveys is available on the secondary surveys webpage. All COVID-19 surveys will close on 31/3/22.