COVID-19 captured in e-REC

European Society of Endocrinology (ESE) and Endo-ERN launch initiative to collect data on patients with rare endocrine or bone conditions and COVID-19 (April 2020).  

The European Registries for Rare Endocrine Conditions (EuRRECa) project, funded by EU CHAFEA and supported by ENDO-ERN, ESE and ESPE has developed an e-reporting tool (e-REC) which has been fully operational for over a year within a robust governance and ethical framework and which does not require individual patient consent. The platform is now open to all centres across the world to report a new confirmed or suspected case of COVID-19 in a patient with an existing endocrine or metabolic bone condition.

If you would like to use the e-REC platform to report a new COVID-19 infection in a patient with an existing condition, please visit the e-REC platform and create an account.

If you are already an active user of e-REC, then, after login, you will need to revise your ‘reporting set up’. 

You can find out more about the functionality of e-REC in this recent report. If you need any assistance, please email the EuRRECa team at info@eurreca.net

For more information from ESE on their activities, resources and information on COVID-19, visit their dedicated webpage

 

Instructions for reporting a new COVID-19 case in a patient with an existing endocrine condition

The e-REC platform has been extended to capture new COVID-19 cases in all of the condition groups supported by EuRRECa.

COVID-19 cases can be reported as suspected or confirmed. If a case is suspected, it is recommended that the return is saved as ‘In Progress’ (not submitted) and once confirmed, the return can be revised.

To add COVID-19 in your Reporting set-up, ensure there are no In Progress returns upon log-in and open ‘reporting set-up’. Click on all the condition groups in adults or in children that you want to report on.

COVID-19 cases should be reported in the month the infection arose.