Data Access Committee

Core Data Access Committee:

Chair	Olaf Hiort, University of Lübeck
Co-Chair	Alberto Pereira, Leiden University Medical Center
Principal Investigator	S. Faisal Ahmed, University of Glasgow
Project Manager	Jillian Bryce, University of Glasgow
Quality Evaluation	Luca Persani, Istituto Auxologico Italiano Milan
Quality Evaluation	Domenica Taruscio, Istituto Superiore di Sanità Rome
Core Outcomes	Olaf Dekkers, Leiden University Medical Center
Patient, Parent & Ethics	Martine Cools, Ghent University
Patient, Parent & Ethics	Arlene Smyth, Office for Rare Conditions, Glasgow
IT & Database	Chris Smythe, University of Glasgow
EuRR-Bone PI	Natasha Appelman-Dijkstra, Leiden University Medical Center
ERN-BOND	Luca Sangiorgi, Sostieni la ricerca dell’IRCCS Istituto Ortopedico Rizzoli
ERN-BOND ePAG	Tenna Toft, Denmark
ESE	Jerome Bertherat, Université Paris Descartes, Paris
ESPE	Erica van den Akker, Erasmus Medical Centre, Rotterdam
ECTS	Carola Zillikens, Erasmus Medical Centre, Rotterdam

To Co-opt Depending On The Theme

Roland Chapurlat	Bone Expert Working Group, Université de Lyon
Thomas Danne	Diabetes Expert Working Group, Children’s Hospital Auf Der Bult Hannover
Gabrielle Hausler	Bone Expert Working Group, Vienna Bone & Growth Centre
Harshini Katugampola	Pituitary Expert Working Group, Great Ormond Street Hospital London
Agnès Linglart	Ca & Phos Expert Working Group, Assistance Publique–Hopitaux de Paris
Irène Netchine	Growth Expert Working Group, Assistance Publique–Hopitaux de Paris
Anna Nordenström	Sex Development Expert Working Group, Karolinska University Hospital Stockholm
Attila Patócs	Genetic Tumours Expert Working Group, Semmelweis University Budapest
Nicole Reisch	Adrenal Expert Working Group, Ludwig-Maximilians-University Munich
Zdeněk Šumnik	Diabetes Expert Working Group, University Hospital Motol Prague
Edward Visser	Thyroid Expert Working Group, Erasmus Medical Centre Rotterdam

DAC members’ area (password protected)