Data Access Committee

Core Data Access Committee:

ChairOlaf Hiort, University of Lübeck
Co-ChairAlberto Pereira, Leiden University Medical Centre
Principal InvestigatorS. Faisal Ahmed, University of Glasgow
Project ManagerJillian Bryce, University of Glasgow
Quality EvaluationLuca Persani, Istituto Auxologico Italiano Milan
Quality EvaluationDomenica Taruscio, Istituto Superiore di Sanità Rome
Core OutcomesOlaf Dekkers, Leiden University Medical Centre
Patient, Parent & EthicsMartine Cools, Ghent University
Patient, Parent & EthicsArlene Smyth, Office for Rare Conditions, Glasgow
EuRR-BoneNatasha Appelman-Dijkstra, Leiden University Medical Centre
ERN-BONDLuca Sangiorgi, Sostieni la ricerca dell’IRCCS Istituto Ortopedico Rizzoli
ESEJerome Bertherat, Université Paris Descartes, Paris
ESPE Erica van den Akker, Erasmus Medical Centre, Rotterdam

To Co-opt Depending On The Theme

Roland ChapurlatBone Expert Working Group, Université de Lyon
Thomas DanneDiabetes Expert Working Group, Children’s Hospital Auf Der Bult Hannover
Harshini KatugampolaPituitary Expert Working Group, Great Ormond Street Hospital London
Agnès LinglartCa & Phos Expert Working Group, Assistance Publique–Hopitaux de Paris
Irène NetchineGrowth Expert Working Group, Assistance Publique–Hopitaux de Paris
Anna NordenströmSex Development Expert Working Group, Karolinska University Hospital Stockholm
Attila PatócsGenetic Tumours Expert Working Group, Semmelweis University Budapest
Nicole ReischAdrenal Expert Working Group, Ludwig-Maximilians-University Munich
Zdeněk ŠumnikDiabetes Expert Working Group, University Hospital Motol Prague
Edward VisserThyroid Expert Working Group, Erasmus Medical Centre Rotterdam