Data Access Committee:
| Chair | Olaf Hiort, University of Lübeck |
| Co-Chair | Alberto Pereira, Leiden University Medical Centre |
| Principal Investigator | S. Faisal Ahmed, University of Glasgow |
| Project Manager | Jillian Bryce, University of Glasgow |
| Statistician | Vacant |
| ESPE Representative | Erica van der Akker, Erasmus Medical Centre, Rotterdam |
| ESE Representative | Jerome Bertherat, Université Paris Descartes, Paris |
| Quality Evaluation | Luca Persani, Istituto Auxologico Italiano Milan |
| Quality Evaluation | Domenica Taruscio, Istituto Superiore di Sanità Rome |
| Core Outcomes | Olaf Dekkers, Leiden University Medical Centre |
| Patient, Parent & Ethics | Martine Cools, Ghent University |
| Patient, Parent & Ethics | Arlene Smyth, Office for Rare Conditions, Glasgow |
To Co-opt from Project Governing Board Depending On The Endocrine Theme
| Thomas Danne | Diabetes Expert Working Group, Children’s Hosp Auf Der Bult Hannover |
| Mehul Dattani | Pituitary Expert Working Group, Great Ormond Street Hospital London |
| Agnès Linglart | Ca & Phos Expert Working Group, Assistance Publique–Hopitaux de Paris |
| Irène Netchine | Growth Expert Working Group, Assistance Publique–Hopitaux de Paris |
| Anna Nordenström | Sex Development Expert Working Group Karolinska Univ Hosp Stockholm |
| Attila Patócs | Genetic Tumours Expert Working Group Semmelweis University Budapest |
| Nicole Reisch | Adrenal Expert Working Group Ludwig-Maximilians-University Munich |
| Zdeněk Šumnik | Diabetes Expert Working Group, University Hospital Motol Prague |
| Edward Visser | Thyroid Expert Working Group, Erasmus Medical Centre Rotterdam |
Core Registry Data Access Policy v1.2-310519
Future Composition Of The Committee:
The current composition of the Data Access Committee reflects the Project Governing Board of the EuRRECa project which is funded by European Union’s Health Programme (2014-2020) and also supported by the European Reference Network on Rare Endocrine Conditions (Endo-ERN), European Society of Endocrinology (ESE) and the European Society for Paediatric Endocrinology (ESPE). On completion of the project, the tenure of the Committee members will become fixed to a limited term and the composition of the Committee will continue to reflect its principal stakeholders and supporters.
