Data Access Process

Reasons for requiring Research Support from the Core Registry or e-REC

  • Search for cases
  • Designing a study/survey
  • Preparing case for funding
  • Performing a study/survey (may require additional local ethical approval)

Procedure for obtaining data for Research

Searching the Core Registry or e-REC for data at centres other than the user’s own centre is only possible by the project management team. 

The EuRRECa team in Glasgow can provide more extensive study support depending on the investigator’s needs and may include:-

  • Advice on study process and design
  • Liaising with Core Registry and e-REC users on behalf of the study investigators
  • Developing study specific modules

Prospective investigators should contact the office before embarking on, developing, or seeking funding for the study so that the costs of this proposed work can be clarified.

Please complete the following forms:

Once submitted all study documents are sent to the Data Access Committee for approval.

 
 

ACKNOWLEDGEMENT

EuRRECa must be acknowledged on all publications that use the data with the following text.

This project is part of the project ‘777215 / EuRRECa’ which has received funding from the European Union’s Health Programme (2014-2020). The EuRRECa project is also supported by the European Reference Network for rare Endocrine Conditions (Endo-ERN), the European Society of Endocrinology and the European Society for Paediatric Endocrinology’