Skip to content
EuRRECa

EuRRECa

  • Home
  • About
    • About EuRRECA
    • Project Group
    • Project Governing Board
    • Data Access Committee
    • Sponsors
    • Independent Advisory Board
    • Work Packages
      • WP1: Management & Coordination
      • WP2: Dissemination & Access
      • WP3: Quality Assurance & Evaluation
      • WP4: Core Outcomes
      • WP5: Patients, Parents & Ethics
      • WP6: Registry & e-Reporting
    • Expert Working Groups
      • EWG1 Rare Ca/PO; Growth & Obesity
      • EWG2 Rare Endocrine Tumours
      • EWG3 Rare Pituitary Disorders
      • EWG4 Rare Thyroid Disorders
      • EWG5 Rare Adrenal Disorders
      • EWG6 Rare Disorders Of Sex Dev & Maturation
      • EWG7 Rare Disorders Of Glucose & Insulin
      • EWG8 SWEET Consortium
  • News
    • Events
    • Newsletters
    • Subscribe to news & updates
  • e-REC
    • Access e-REC
    • Clinicians
      • About e-REC
      • Create An Account
      • Information sheets E-REC
      • Using e-REC
      • Ethics Approval
    • Patients
      • Public Information Sheets
      • About e-REC
    • Research
      • Obtaining Registry Data for Research
      • Publications related to EuRRECa
      • Secondary Surveys
      • Publication Plan
    • e-REC Reports
    • Data Elements
    • COVID-19 Surveillance
  • Core Registry
    • Access the Core Registry
    • Clinicians
      • About the Core Registry
      • Create An Account
      • Using Core Registry
      • Information Sheets
      • Ethics Approval
      • Providing Access to Patients
    • Patients
      • About the Core Registry
      • Information Sheets
      • Accessing Your Record
      • Registering yourself as a patient in the Core Registry
    • Research
      • Obtaining Registry Data for Research
      • Publications related to EuRRECa
      • Secondary Surveys
      • Publication Plan
    • Reports
    • Data Elements
    • Affiliate Registries
  • COVID-19 Projects
    • COVID-19 Surveillance
  • Contact or provide feedback

Draft documents

EuRRECa Core Endocrine Registry Data Access Policy – End of Consultation on Version 1 30/06/19

The Needs Of Patients In Registries – End of Consultation on 30/06/19

Share this:

  • Twitter
  • Facebook

Like this:

Like Loading...
Create a website or blog at WordPress.com
%d bloggers like this: