e-REC

e-REC (e-Reporting Of Rare Endocrine Conditions) is an electronic reporting system which captures activity and allows for a better understanding of the occurrence of the rare endocrine conditions covered within Endo-ERN. This electronic reporting system will allow measurement of core indicators of ERN activity as well as allowing Endo-ERN to embark on its stated mission of objectively mapping the conditions, the services and other related activity. The pilot project for e-REC started in July 2018 and is now open to all centres within as well as out-with Endo-ERN.

Sign up to e-REC
e-REC Reporting Instructions

Complete the Reporting Clinician Template (excel)


e-REC Data Governance & Ethics Information

e-REC Information Sheets For Public Information

BulgarianEnglishGermanLithuanian
CzechEstonianHungarianPolish
DutchFrenchItalianRomanian

Results of e-REC Pilot (July-Dec 2018)


e-REC Participating Centres

AOU S.Orsola-Malpighi, Bologna

APDP – Diabetes Portugal, Lisbon

Assistance Publique – Consortium Cochin, Robert Debré, Necker, St Antoine, La Pitié Salpétrière, Trousseau University HospitalsHospital Bicêtre, Paris

Azienda Ospedaliera di Padova (AOP)

Azienda Ospedaliera Universitaria “Federico II”, Napoli

Azienda Ospedaliero Universitaria Città della Salute e della Scienza di Torino

Azienda Ospedaliero Universitaria Pisana – Obesity Centre, Endocrinology Unit

Birmingham Children’s Hospital

Centre hospitalier de Luxembourg

Centre Hospitalier Universitaire de Liège

Cliniques Universitaires St-Luc, Brussels

Dubrava University Hospital, Zagreb, Croatia

Erasmus Medical Centre, Rotterdam

Ghent University Hospital

Great Ormond Street Hospital for Children/University College London Hospitals

Hannoversche Kinderheilanstalt, Diabetes Center for Children and Adolescents

Hospital of Lithuanian University of Health Sciences, Kaunos

Hospital Universitari Vall d’Hebron, Barcelona

Hospital Universitario Cruces, Bilboa

Institute of Oncology “Prof.Dr.Ion Chiricuta” Cluj-Napoca

Istituto Auxologico Italiano, Milan

Karolinska University Hospital, Stockholm

Leiden University Medical Center

M.Sklodowska-Curie Memorial Institutre – Oncology Center, Gliwice

Maastricht University Medical Center

Maxima Medsich Centrum, Utrecht

Medizinische Klinik und Poliklinik IV, LMU Munich

NHS Greater Glasgow and Clyde Board (RHC/QEUH)

Otto-von-Guericke University Magdeburg

Oxford University Hospitals Foundation NHS Trust

Pitie Salpêtrière Hospital, Paris

Radboud University Nijmegen Medical Centre

Semmelweis University, Budapest

Tartu University Hospital

Universitätsklinikum Schleswig-Holstein Luebeck

University Hospital Aachen

University Hospital Essen – Center for Rare Endocrine Diseases

University Hospital Florence, Careggi

University Hospital Královské Vinohrady, Prague

University Hospital Marburg

University Hospital Motol, Prague

University Hospital Würzburg

University Hospitals Southampton – NHS Foundation Trust

University Medical Center Utrecht

University Medical Centre Ljubljana

UZ Leuven

Contact or provide feedback