e-REC

e-REC (e-Reporting Of Rare Endocrine Conditions) is an electronic reporting system which captures activity and allows for a better understanding of the occurrence of the rare endocrine conditions covered within Endo-ERN. This electronic reporting system will allow measurement of core indicators of ERN activity as well as allowing Endo-ERN to embark on its stated mission of objectively mapping the conditions, the services and other related activity. The pilot project for e-REC started in July 2018 and is now open to all centres within as well as out-with Endo-ERN.

Sign up to e-REC
e-REC reporting instructions

Complete the Reporting Clinician Template (excel)
Report on e-REC Pilot (July-Dec 2018)
e-REC Data Information Sheets
e-REC Ethics Information Sheets

e-REC Information Sheets

BulgarianEnglishGermanLithuanian
CzechEstonianHungarianPolish
DutchFrenchItalianRomanian

 

e-REC Participating Centres

Reference Centre NameMember State CityReporting on  MTGs*Age <18, ≥18, All
Clinique Universitaires Saint-Luc BEBrussels1 3 4 5 6 7 8All
UZ Brussels BEBrussels6 7All
Ghent University Hospital BE Ghent1 2 3 4 5 6 7 8<18
Královské Vinohrady University Hospital in PragueCZ Prague1 2 3 4 6≥18
University Hospital MotolCZ Prague1 2 3 5 6 7 <18
Tartu University Hospital EETartu2 3 5 6 7 8<18
Hospital Bicêtre FR Paris1 2 3 5 6 7All
Hannoversche Kinderheilanstalt, Diabetes Center for Children and Adolescents DEHannover3All
Universitätsklinikum Schleswig-Holstein DELuebeck2 4 7 8All
Otto-von-Guericke-University, Med. Faculty, Central German Network for Rare diseaseDEMagdeburg1 2 3 5All
Ludwig-Maximilian-University MunichDE Munich1 2 3 4 5 6 7 8≥18
Semmelweis University HU Budapest1 2 3 4 5 6 7 8All
Azienda Ospedaliera Sant’Orsola MalpighiIT Bologna1 2 3 4 5 6 7 8All
Istituto Auxologico Italiano – Istituto di Ricovero e Cura a Carattere ScientificITMilan1 4 5 6 7 8All
Azienda Ospedaliera Universitaria “Federico II”, NapoliIT Naples1 2 3 4 5 6 7 8All
Hospital of Lithuanian University of Health Sciences Kauno klinikos LT Kaunas1 2 3 4 5 6 7 8All
Leiden University Medical Center NL Leiden6≥18
Erasmus MC: University Medical Center RotterdamNLRotterdam8All
University Medical Center Utrecht – Dept. of Endocrine Oncology NLUtrecht1 2 4 6 7 8All
Maria Sklodowska-Curie institute – Oncology Center Gliwice BranchPO Gliwice1 2 4 6 8All
APDP – Diabetes Portugal PO Lisbon3All
University Hospitals Birmingham – NHS Foundation Trust UK Birmingham3 8<18
NHS Greater Glasgow & Clyde Health Board UK Glasgow1 2 3 4 5 6 7 8<18
Great Ormond Street Hospital/UCLH – NHS Foundation TrustUK London1 2 3 4 5 6 7 8<18

*Main Thematic Groups

  • MTG1 Adrenal
  • MTG2 Disorders of Calcium, & Phosphate Homeostasis
  • MTG3 Genetic Disorders of Glucose & Insulin Homeostasis
  • MTG4 Genetic Endocrine Tumour Syndromes
  • MTG5 Growth & Genetic Obesity
  • MTG6 Pituitary
  • MTG7 Sex Development & Maturation
  • MTG8 Thyroid

 

Contact or provide feedback