e-REC (e-Reporting Of Rare Conditions) is an electronic reporting system which captures activity and allows for a better understanding of the occurrence of the rare conditions covered within networks such as Endo-ERN and BOND. The platform is open to all centres that look after people with such conditions, it allows continuous reporting of core indicators of activity and enables clinical networks to objectively map the conditions and related activity. The pilot project for e-REC started in July 2018 using a REDCap platform and moved to a bespoke platform in November 2019 that has been developed for the specific needs of its users.

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Data Governance & Ethics Information

Latest Results

To obtain data from e-REC or to find out whether your centre is participating in e-REC, please contact info@eurreca.net

e-REC Information Sheets For Public Information


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