The EuRRECa project launched in 2018, includes the EuRRECa Core Registry which has been operational since June 2019 and is approved by the National Ethics Service and Information Governance authorities in the UK. The information collected by the Core Registry is what is expected to be collected during routine clinical care and may be shared with approved users to perform or develop new research studies. The Core Registry does not collect any information on names, addresses and local hospital numbers. Patients can also access their own information in the Core Registry. All information is kept strictly confidential and handled through secure password protected electronic systems and only those who are directly involved with the Registry are able to obtain access. All information is stored on a secure server in the University of Glasgow in compliance with the UK Data Protection Act (2018) and General Data Protection Regulation (GDPR 2016/679).