EuRRECa is holding its 3rd annual meeting online on Monday 12th April 2021. This meeting will showcase the activities of the EuRRECa project which was launched in 2018 and the online platform allows us to welcome all professionals, scientists and patients and patient groups who have an interest in rare endocrine and bone conditions.
Recording of the meeting
Monday 12th April 2021, 10:45-13:15 CET (Zoom link)
Full Programme
10:45 EuRRECa Project Group Meeting
10:50 – 11:00 Introduction & summary of activities over last year – Faisal Ahmed
11:00 – 11:10 The EuRR-Bone project – Natasha Appelman-Dijkstra
11:10 – 11:20 e-Reporting of Rare Conditions (WP06) –Salma Ali [e-REC Report]
11:20 – 11:30 Core Registry (WP06) – Ana Luisa Priego [Core Registry Activity Report]
11:30 – 11:40 Developing a list of affiliate registries (WP03) – Salma Ali
11:40 – 11:50 Developing core & generic outcomes (WP04, WP05, EuRR-Bone) – Ana Luisa Priego
11:50 – 12:00 Discussions and coffee
12:00 – 13:10 Projects
- Calcium & Phosphate – Agnes Linglart
- Hypothalamic & Pituitary – Mehul Dattani, Ana Luisa Priego
- Thyroid – Edward Visser
- Adrenal – Nicole Reisch
- Sex Development & Maturation – Anna Nordenstrom
- Glucose & Insulin – Zdenek Sumnik
- COVID19 Project With ESE – Jillian Bryce
13:10-13:15 Discussion
13:15 Project Group Meeting Ends
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