EuRRECa Annual Project Group Meeting – 12th April 2021

EuRRECa is holding its 3rd annual meeting online on Monday 12th April 2021.  This meeting will showcase the activities of the EuRRECa project which was launched in 2018 and the online platform allows us to welcome all professionals, scientists and patients and patient groups who have an interest in rare endocrine and bone conditions.  

The programme is below.

Registration is free and is open now until 11/4/21

Register Here

Monday 12th April 2021, 10:45-13:15 CET (Zoom link)

Full Programme

10:45                       EuRRECa Project Group Meeting

10:50 – 11:00        Introduction & summary of activities over last year – Faisal Ahmed

11:00 – 11:10        The EuRR-Bone project – Natasha Appelman-Dijkstra

11:10 – 11:20        e-Reporting of Rare Conditions (WP06) –Salma Ali [e-REC Report]

11:20 – 11:30        Core Registry (WP06) – Ana Luisa Priego [Core Registry Activity Report]

11:30 – 11:40        Developing a list of affiliate registries (WP03) – Salma Ali

11:40 – 11:50        Developing core & generic outcomes (WP04, WP05, EuRR-Bone) – Ana Luisa Priego

11:50 – 12:00        Discussions and coffee

12:00 – 13:10        Projects

  • Calcium & Phosphate – Agnes Linglart
  • Hypothalamic & Pituitary – Mehul Dattani, Ana Luisa Priego
  • Thyroid – Edward Visser
  • Adrenal – Nicole Reisch
  • Sex Development & Maturation – Anna Nordenstrom
  • Glucose & Insulin – Zdenek Sumnik
  • COVID19 Project With ESE – Jillian Bryce

13:10-13:15           Discussion

13:15                       Project Group Meeting Ends