EuRRECa Annual Project Group Meeting – 12th April 2021

EuRRECa is holding its 3rd annual meeting online on Monday 12th April 2021.  This meeting will showcase the activities of the EuRRECa project which was launched in 2018 and the online platform allows us to welcome all professionals, scientists and patients and patient groups who have an interest in rare endocrine and bone conditions.  

Recording of the meeting

Monday 12th April 2021, 10:45-13:15 CET (Zoom link)

Full Programme

10:45                    EuRRECa Project Group Meeting

10:50 – 11:00       Introduction & summary of activities over last year – Faisal Ahmed

11:00 – 11:10        The EuRR-Bone project – Natasha Appelman-Dijkstra

11:10 – 11:20        e-Reporting of Rare Conditions (WP06) –Salma Ali [e-REC Report]

11:20 – 11:30        Core Registry (WP06) – Ana Luisa Priego [Core Registry Activity Report]

11:30 – 11:40        Developing a list of affiliate registries (WP03) – Salma Ali

11:40 – 11:50        Developing core & generic outcomes (WP04, WP05, EuRR-Bone) – Ana Luisa Priego

11:50 – 12:00        Discussions and coffee

12:00 – 13:10        Projects

13:10-13:15           Discussion

13:15                       Project Group Meeting Ends