Pituitary and hypothalamus

Members

Alberto Pereira, Faisal Ahmed, Natasha Appelman-Dikjstra, Nienke Biermasz, Olaf Dekkers, Ana Priego, Amir ZamanipoorLeiden University Medical Center
Faisal AhmedUniversity of Glasgow
Pia BurmanSkane University Hospital Malmö
Luis Castano, Sonia Gaztambide, Itxaso RicaHospital Universitario Cruces
Mehul Datani, Hoong-Wei Gaan, Harshini KatugampolaGreat Ormond Street Hospital for Children
Benedetta FibbiCareggi University Hospital
Helene Lasolle, Gerald RaverotGroupement Hospitalier Est, Hospices Civils de Lyon
Herman MullerUniversity Children’s Hospital, Klinikum Oldenburg AöR

Objectives

To develop diagnosis specific datasets within the Hypothalamic and Pituitary group of conditions.

Activities

To date, a pituitary tumour module within the EuRRECa Core Registry has been developed and launched and is actively collecting data on this condition both in children and adults. This module includes questions aimed at identifying tumours expressing an aggressive behaviour.