Pituitary and hypothalamus

Members

Faisal Ahmed, Natasha Appelman-Dijkstra, Nienke Biermasz, Olaf Dekkers, Ana Priego, Amir Zamanipoor	Leiden University Medical Center
Alberto Pereira, Dirk Jan Stenvers	Amsterdam University Medical Center
Faisal Ahmed	University of Glasgow
Pia Burman	Skane University Hospital Malmö
Luis Castano, Sonia Gaztambide, Itxaso Rica	Hospital Universitario Cruces
Mehul Datani, Hoong-Wei Gaan, Harshini Katugampola	Great Ormond Street Hospital for Children
Benedetta Fibbi	Careggi University Hospital
Helene Lasolle, Gerald Raverot	Groupement Hospitalier Est, Hospices Civils de Lyon
Herman Muller	University Children’s Hospital, Klinikum Oldenburg AöR
Amit Akirov	Sackler School of Medicine, Tel Aviv University

Objectives

To develop diagnosis specific datasets within the Hypothalamic and Pituitary group of conditions.

Activities

To date, a pituitary tumour module within the EuRRECa Core Registry has been developed and launched and is actively collecting data on this condition both in children and adults. This module includes questions aimed at identifying tumours expressing an aggressive behaviour.