Patients who have given their consent to access their record in the Core Registry must provide the clinican caring for them with an e-mail address. This is captured on the EuRRECa Core Registry Consent Form
Once the patient record is added to the Core Registry, from the Patient List view, the clinician can click on ‘Patient Access’
A preview of the data the patient will see is displayed and the e-mail address can be enetered. Clicking ‘Grant Access’ results in an e-mail being sent to the patient with a link to create their patient account. The patient can view all of their data in read-only mode and can also change their consent preferences. They also have the option to request deletion of their data.