WP4 Members:
| Olaf Dekkers (WP lead) | Leiden, NL | Leiden University Medical Centre |
| Alberto Pereira (WP Deputy) | Leiden, NL | Leiden University Medical Centre |
WP4 Deliverables:
| Deliverable | Title | Estimated Delivery Date | Status |
| D4.1 | Report of core outcomes that are known for conditions covered in Endo-ERN | 31 Jul 2018 | ✓ |
| D4.2 | Generic PRO tool for inclusion in Core Endocrine Registry | 31 Jan 2019 | ✓ |
| D4.3 | Report of age and condition specific PCOM for conditions covered in Endo-ERN | 31 Jan 2020 | ✓ |
| D4.4 | Report on the use of PCOM (including PRO) and their potential for benchmarking | 31 Jul 2021 | ✓ |
WP4 Resources:
- Core Clinical Outcomes For EuRRECa March2019
- Core Data Elements for EuRRECa core endocrine registry
- D4.2 EuRRECa Report January 31st 2019
- Self-Reported Population Health: An International Perspective based on EQ-5D
- D4.3 Report on age and condition specific PCOM January 31st 2020
- D4.4 Report on the use of PCOM (including PRO) and their potential for benchmarking
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