WP5 Members:
| Martine Cools (WP Lead) | Ghent, BE | University of Ghent |
| Arlene Smyth (WP deputy) | Glasgow, UK | Turners Syndrome Support Society |
| Willem Staels | Ghent, BE | University of Ghent |
| Sabina Gainotti | Rome, IT | Istituto Superiore di Sanità |
| Petra Bruegmann | DE | Network Pituitary Gland and Adrenal Gland Diseases. European MEN Alliance. |
| Johan De Graaf | NL | Dutch Hypophysis Foundation |
| Dirk Van Genechten | BE | Net & Men Cancer |
WP5 Deliverables:
| Deliverable | Title | Estimated Delivery Date | Status |
| D5.1 | Report on the needs of patients in registries | 31 Jan 2019 | ✓ |
| D5.2 | Report on existing registries | 31 Jul 2019 | ✓ |
| D5.3 | Report on the patients perspectives on the use of PRO tool in Core Endocrine Registry | 31 Jan 2020 | ✓ |
| D5.4 | Report on the patients perspectives on the use of a Core Endocrine Registry for assessing generic and condition specific PCOMs | 31 Jan 2022 | ✓ |
WP5 Meetings:
- 23 April 2018: WP5 face-to-face meeting, Machelen, Belgium.
- 21 June 2019: WP5 face-to-face meeting, Brussels, Belgium
- To view the minutes, please log in to the Project Governing Board Members’ Area.
WP5 Resources:
EuRRECa 