|Martine Cools (WP Lead)||Ghent, BE||University of Ghent|
|Arlene Smyth (WP deputy)||Glasgow, UK||Turners Syndrome Support Society|
|Willem Staels||Ghent, BE||University of Ghent|
|Sabina Gainotti||Rome, IT||Istituto Superiore di Sanità|
|Petra Bruegmann||DE||Network Pituitary Gland and Adrenal Gland Diseases. European MEN Alliance.|
|Johan De Graaf||NL||Dutch Hypophysis Foundation|
|Dirk Van Genechten||BE||Net & Men Cancer|
|Deliverable||Title||Estimated Delivery Date||Status|
|D5.1||Report on the needs of patients in registries||31 Jan 2019||✓|
|D5.2||Report on existing registries||31 Jul 2019||✓|
|D5.3||Report on the patients perspectives on the use of PRO tool in Core Endocrine Registry||31 Jan 2020||✓|
|D5.4||Report on the patients perspectives on the use of a Core Endocrine Registry for assessing generic and condition specific PCOMs||31 Jan 2022||✓|
- 23 April 2018: WP5 face-to-face meeting, Machelen, Belgium.
- 21 June 2019: WP5 face-to-face meeting, Brussels, Belgium
- To view the minutes, please log in to the Project Governing Board Members’ Area.