WP6 Registry & e-Reporting: Resources

WP6 Members:

Faisal AhmedGlasgow, UKUniversity of Glasgow
Salma AliGlasgow, UKUniversity of Glasgow
Jillian BryceGlasgow, UKUniversity of Glasgow
Chris SmytheGlasgow, UKG11
Shannon MullenGlasgow, UKUniversity of Glasgow

WP6 Deliverables:

DeliverableTitleEstimated Delivery DateStatus
D6.1Core Dataset31 Jul 2018
D6.2Endo-ERN e-Reporting (e-REC) system31 Aug 2018
D6.3Beta version of Core Endocrine Registry31 Jan 2019
D6.4Operating version of Core Endocrine Registry31 Jul 2019
D6.5Activity report on Core Endocrine Registry31 Jan 2020
D6.63rd Activity report on Core Endocrine Registry31 Jan 2021 ✓
D6.7Final Report on Core registry 28 Feb 2022
D6.8Activity Report on e-REC31 March 2021 ✓
D6.9Final Activity Report on e-REC28 Feb 2022

WP6 Resources:

The Impact Of EU GDPR On Scientific Research & Disease Registries

EC JRC Recommendation For Core Data Elements

RD Connect Recommendation For Core Data Elements

EuRRECa CER activity Report January 2020

e-REC Activity Report Feb 2020

e-REC Activity Report Sept 2020

Core Registry Activity Report Aug 2020

Core Registry Activity Report Jan 2021

Core Registry

e-REC

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