WP6 Members:
| Faisal Ahmed | Glasgow, UK | University of Glasgow |
| Salma Ali | Glasgow, UK | University of Glasgow |
| Jillian Bryce | Glasgow, UK | University of Glasgow |
| Sam Okure | Glasgow, UK | University of Glasgow |
| Tom Muir | Glasgow, UK | University of Glasgow |
| Marion Yakova | Glasgow, UK | University of Glasgow |
| Natalie Holenka | FR |
WP6 Deliverables:
| Deliverable | Title | Estimated Delivery Date | Status |
| D6.1 | Core Dataset | 31 Jul 2018 | ✓ |
| D6.2 | Endo-ERN e-Reporting (e-REC) system | 31 Aug 2018 | ✓ |
| D6.3 | Beta version of Core Endocrine Registry | 31 Jan 2019 | |
| D6.4 | Fully operating version of Core Endocrine Registry | 31 Jul 2019 | |
| D6.5 | Activity report on Core Endocrine Registry | 31 Jan 2020 | |
| D6.6 | Final report on Core Endocrine Registry | 31 Jan 2021 |
WP6 Resources:
- The Impact Of EU GDPR On Scientific Research & Disease Registries
- EC JRC Recommendation For Core Data Elements
- RD Connect Recommendation For Core Data Elements
- EuRRECa Core Data Elelments
We want your feedback!
Click here to access the draft documents in open consultation.
Please provide feedback before 4th September 2019.
