Steering Committee

⋅ Agnès Linglart, Assistance Publique–Hopitaux de Paris

⋅ Alberto Pereira, Leiden University Medical Centre

⋅ Corinna Grasemann, Children’s Hospital Bochum

⋅ Domenica Taruscio, National Center for Rare Diseases, Istituto Superiore di Sanità Rome

⋅ Gudmundur Johannsson, University of Gothenburg

⋅ Luca Sangiorgi, Istituto Ortopedico Rizzoli di Bologna

⋅ Martine Cools, Ghent University

⋅ Olaf Dekkers, Leiden University Medical Centre

⋅ Rasa Verkauskiene, Kauno Klinikos

⋅ Zdeněk Šumnik, University Hospital Motol Prague