The Project

The project, launched in 2018, includes an e-reporting programme (e-REC), a core endocrine registry that collects a core common dataset and a small number of commonly agreed core clinical patient-centred outcomes. Lastly, the project will signpost participants to existing high-quality, detailed, disease-specific registries. The project works closely with Endo-ERN, ESPE and ESE and the platforms it has developed are also being adopted by ERN-BOND and its related registry, EuRR-Bone.